“Being a family caregiver is one of the most important jobs you’ll ever have—and one of the most challenging. The role can be frustrating, satisfying, exhausting, joyful, thankless and everything in between. That’s why we've put together these targeted, easy-to-use guides to help you find support, make tough decisions and handle conflict during your caregiving journey. Whether it’s your first time being a caregiver or you’re a pro; caring from afar or in your own home – AARP has you covered with resources and tips for people like you!”

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https://eldercare.acl.gov/Public/Index.aspx  

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The Aphasia Network is a 501(c)(3) non-profit organization supporting an under-served population of persons with aphasia in the United States. Aphasia, an acquired communication disorder caused by brain injury or stroke, impairs comprehension and production of spoken language, but does not affect intelligence. Because communication is essential to relationships and performing daily tasks, persons with aphasia and their families can experience emotional, physical and financial stress and social isolation. Our goals are to raise awareness and help survivors rebuild communication-associated life systems impacted by aphasia: Quality of life, Daily life skills, Community and Support.

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http://aphasianetwork.org/

"The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums."

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https://archrespite.org/

“An Area Agency on Aging (AAA) is a public or private nonprofit agency designated by a state to address the needs and concerns of all older persons at the regional and local levels. AAA is a general term—names of local AAAs may vary. AAAs coordinate and offer services that help older adults remain in their homes, if that is their preference, aided by services such as home-delivered meals, homemaker assistance, and whatever else it may take to make independent living a viable option. By making a range of supports available, AAAs make it possible for older individuals to choose the services and living arrangements that suit them best."

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https://eldercare.acl.gov/Public/Index.aspx

A PowerPoint presentation and two-page hand out with information on the basics of brain health provided by the U.S. Department of Health and Human Services.    

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https://acl.gov/brain-health

“Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of older age. CAN serves a broad spectrum of caregivers ranging from the parents of children with special needs to the families and friends of wounded soldiers. CAN is a nonprofit organization providing education, peer support, and resources to family caregivers nationwide free of charge.”

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https://caregiveraction.org/

Many informational resources and tools exist to help older adults and their caregivers prepare for emergencies and disasters, provided by the Centers for Disease Control and Prevention (CDC.)

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https://www.cdc.gov/aging/emergency/preparedness.htm

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"The Healthy Brains Initiative is an online resource center where you can access information and manage your brain health.  The Healthy Brains interactive website provides you with innovative technology tools and much more.

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Using your computer, laptop, tablet, or smart phone you can complete customized questionnaires, receive personalized reports and recommendations, and keep up-to-date on scientific news anytime and anywhere."

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https://healthybrains.org/healthy-brains-initiative

“The mission of Family Caregiver Alliance (FCA) is to improve the quality of life for family caregivers and the people who receive their care.”

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https://www.caregiver.org/

Information on long term care insurance provided by the U.S. Department of Health and Human Services.

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https://longtermcare.acl.gov/

“Established in 1996, the National Alliance for Caregiving (NAC) is a 501(c)(3) non-profit coalition dedicated to improving quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation.  

 

In advancing our mission, NAC conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues. We recognize that family caregivers provide important societal and financial contributions toward maintaining the well-being of those in their care. In addition to national research and advocacy, NAC provides technical assistance to a national network of caregiving coalitions representing nearly 30 states and localities in the United States and serves as Founder and Secretariat for the International Alliance of Carer Organizations (IACO).”

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​https://www.caregiving.org/

“The National Aphasia Association (NAA) is a non-profit organization founded in 1987 by Martha Taylor Sarno, MA, MD,(hon) as the 1st National organization dedicated to advocating for persons with aphasia and their families. Several of our board members, including the President, are people with Aphasia or family members.

Our goal is to provide access to research, education, rehabilitation, therapeutic and adv  ocacy services to individuals with aphasia and their caregivers. The NAA acts as a syndicate of resources, promoting sense of community among individuals and caregivers.

NAA is a 501(c)(3) not-for-profit organization.”

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https://www.aphasia.org/

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The Personal Values Card Sort tool was created by W.R. Miller, J.C’de Baca, D.B. Matthews, P.L. Wilbourne; University of New Mexico, 2001

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This tool helps you identify the values that are important to you. Each card contains words that are important to some people. (Use the blank cards to fill in any values that are not already represented for you.) Sort through the cards and narrow them down to your top 10 most important values.

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​http://www.motivationalinterviewing.org/sites/default/files/valuescardsort_0.pdf